Accountability: SU2C Apologizes to My Mom & the Lung Cancer Community

by jenniferwindrum on September 29, 2010

momscarf1 Accountability: SU2C Apologizes to My Mom & the Lung Cancer Community

UPDATE!
As a PR person and social media nut, THIS is exactly why I don’t “DO” status quo, and why YOU shouldn’t either! Accountability!

The following is a blog post I wrote to my WTF? community (Where’s the Funding for Lung Cancer?)

I am very pleased to share this SU2C update with you!

I (we) received this message (in the comments section of my previous blog post “My Mom’s Lung Cancer Rant & SU2C’s Response.”) from Tom Chiodo regarding my mom’s rant….and all of your rants about SU2C’s portrayal of lung cancer during its live telecast.

su2c logo Accountability: SU2C Apologizes to My Mom & the Lung Cancer Community

Tom Chiodo (unregistered) wrote:

Jennifer,

I am a senior member of the Stand Up To Cancer communications team, and a cancer survivor. I want to apologize that we offended you and other viewers with the telecast’s lung cancer segment and then with our reply to some of the emails we received. I want to reach out individually to everyone that wrote to us. We take all the feedback we’ve received to heart, and going forward, it will help inform our decision-making process about the content we produce.

Thank you for noting that we did make an effort in the show to convey that smoking isn’t the only cause of lung cancer. Every single person diagnosed with lung cancer is important; in no way did we mean to convey otherwise.

Significant and very promising research relating to lung cancer is being done by SU2C investigators: on our “Epigenetics Dream Team”, our “Circulating Tumor Cell Chip Dream Team”, as well as a number of our Innovative Grant Recipients. The video progress report about the Epigenetics Team — which features a lung cancer patient — can be seen at http://www.standup2cancer.org/sutv#channelId=/sutv/service/thelab (In the list on right, click on “Epigenetics Dream Team on the 2010 Show”). In addition, information on this clinical trial and others can be found at http://www.standup2cancer.org/clinicaltrials. (Scroll to the bottom of the home page and click on SU2C Dream Team clinical trial information.)

Our scientific partner, the American Association for Cancer Research (AACR), will issue a call for ideas for our next round of Innovative Grants within the next month, and we’d like to ask for your assistance. If you know of institutions where promising lung cancer research is being done, please notify us, or our AACR colleagues at su2c@aacr.org and they will contact the Directors of those Centers to encourage their researchers to consider applying for a grant. We can’t guarantee the outcome of the selection process as those recommendations are made by our Scientific Advisory Committee, but this would be a very helpful step you and others in the community can take to maximize the likelihood that lung cancer continues to be directly addressed by Stand Up To Cancer funded researchers. Additionally, with Lung Cancer Awareness Month coming up in November, we’ll be reaching out to lung cancer advocacy groups soon to determine the best way our su2c.org website can help heighten awareness.

Thank you for raising your concerns with us and for all you do to honor your mom, as well as others affected by lung cancer.

Sincerely,

Tom Chiodo
tchiodo@eifoundation.org

I sincerely thank Tom for his message, helpful links and offers of assistance for potential research grants and direction for awareness during Lung Cancer Awareness Month. As Tom says, there are no guarantees. I understand that. But, boy, do I truly appreciate this kind of outreach and opportunity. I am GAME!!!

Thank you ALL for posting your comments and helping to get SU2C’s attention. We ARE making progress!!

As always, I would love your feedback. What do you think of Tom’s message?

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  • Richard Leutzinger,Jr.

    I think that it has all of the seeds of a great beginning Jen and it certainly is a much better letter than the one that your Mom and other people received. I truly hope that they are as sincere as there letters comes across, but if not, I wouldn't want to be in their shoes when they meet their maker. For now however, I view it as very sincere letter / response and I pray that it remains so always ! Always great to hear that ” WTF ” is making a difference, always !

  • http://twitter.com/maggielmcg maggielmcg

    Yay! GREAT example of why stopping at just being mad and thinking “what's the point of complaining because it won't make any difference anyway” is taking the easy way out these days; standing up and complaining today CAN and does make a difference. For better or for worse, companies and nonprofits are being bombarded with the message “don't ignore bad comments” “engage!” etc–they are listening and they want to make things right with regard to public opinion. Whatever the motive, it makes now an opportune time to make a stand for things we believe in and know there's a decent chance it will make a difference.

  • http://www.wtflungcancer.com/ Jennifer Windrum

    Thanks and AMEN Maggie!!!

    jennifer stauss windrum

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